About Us

The Marfan Foundation's mission is to save lives and improve the quality of life of individuals with Marfan syndrome, Vascular Ehlers-Danlos syndrome, Loeys-Dietz, and other genetic aortic and vascular conditions. The Foundation works tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness. Learn more and get involved at www.marfan.org. 

For more information: www.marfan.org or call  516-883-8712