Hero With A Heart 2018
Dr. Marcia Willing
Dr. Marcia Willing holds a Phd in Genetics in addition to her medical degree. She received her Pediatric residency and medical genetics fellowship training at the University of Washington in Seattle. She is a medical geneticist specializing in hereditary connective tissue disorders, including aneurysm syndromes like Marfan syndrome and Loeys-Dietz syndrome. She has been a Professor of Pediatrics at Washington University in St. Louis since 2009. Prior to that, she was at the University of Iowa for 18 years.
Dr. Willing is the Director of the Connective Tissue Disorders Clinic at St. Louis Children's Hospital and the Medical Geneticist for the Adult Marfan and Related Disorders Clinic where she works alongside Dr. Alan Braverman.
Our Appreciation to our Past Honorees for making this
Decade of Progress Possible
The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. Marfan syndrome is a chronic and progressive genetic disorder that affects the body's connective tissue. There are also several disorders related to Marfan syndrome that cause people to struggle with similar physical problems.
We will not rest until we’ve achieved victory— a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.
For more information: www.marfan.org
For more information about Heartworks St. Louis, please contact Deborah Goodman: