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The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. Marfan syndrome is a chronic and progressive genetic disorder that affects the body's connective tissue. There are also several disorders related to Marfan syndrome that cause people to struggle with similar physical problems.
We will not rest until we’ve achieved victory— a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.
For more information: www.marfan.org
For more information about HeartWorks New York City, please contact Deborah Goodman: