Ann Reinking, recipient of The Karen Murray Inspiration of Excellence Award
Ann Reinking, Tony Award winner for Best Choreography for a Musical (Chicago, the revival), actress, director, and dancer, is honored by The Marfan Foundation for her many years of activism and philanthropy on behalf of all those living with Marfan sydrome or a related disorder. As the mother of a child with Marfan syndrome, Ann understands the challenges of living with a rare disorder and has used her talents and influence to help The Marfan Foundation fulfill its mission of improving the quality of life for all those affected.
Hero with Heart Honorees Dr. Reed Pyeritz and Gil Bashe
Dr. Reed Pyeritz
Dr. Reed Pyeritz is the William Smilow Professor of Medicine at the Perelman School of Medicine at the University of Pennsylvania. His research has focused on Marfan syndrome and improving medical care, and he led the first trial demonstrating the benefit of beta-blockers for this population. In 1979 he encouraged patients to create a family support group that evolved into The Marfan Foundation as we know it today. Dr. Pyeritz is an international authority on the genetics of cardiovascular disorders, especially Marfan syndrome and hereditary aortic conditions, and is the co-editor of the standard text in his field, Principles and Practice of Medical Genetics and Genomics.
Gil Bashe is the Managing Partner, Global Health, at Finn Partners. He is the recipient of the Hero with Heart award for his life-long work as a health advocate. Gil is a vocal proponent of insuring patients have choices and access to care. His commitment to patient access to biomedical and technical innovation led him to join the the Galien and American Academy of Pain Medicine Foundation boards. He has been an active volunteer leader with the American Heart Association for over 20 years. Gil is the recipient of numerous honors and awards, including being named of the Top 50 Most Influential People in Healthcare and membership in the PR News Hall of Fame. He says his greatest accomplishment is in making a difference in people's lives.
Karen Murray, Corporate Host
Karen Murray is the CEO of Sequential Brands Group and a member of its Board of Directors. Karen is a nationally recognized leader in the retail world with over 30 years experience managing consumer brands in both licensing and operating businesses. Since her son's diagnosis in 1996, she has worked tirelessly to advance all areas of the Marfan Foundation's mission: education, support, and research. She is currently the Chairman of the Board of The Marfan Foundation and is the co-founder of the HeartWorks New York City gala, now in its 18th year.
Thank you to our Leadership Council for their support:
Duke Cameron, MD
Leonard Girardi, MD
Paul Sponseller, MD
The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. Marfan syndrome is a chronic and progressive genetic disorder that affects the body's connective tissue. There are also several disorders related to Marfan syndrome that cause people to struggle with similar physical problems.
We will not rest until we’ve achieved victory— a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.
For more information: www.marfan.org
For more information about HeartWorks New York City, please contact Deborah Goodman: