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To pay by check, please mail to: 

The Marfan Foundation

22 Manhasset Avenue

Port Washington, NY 11050

 

 

Thank you to our Generous Sponsors:

  • SKS Partners
  • Nick and Whiteley Wheeler
  • Randi & Bob Fisher
  • Brooks & Danielle Walker
  • Invitae
  • Mrs. Helen Spalding
  • Leslie Walker
  • Becky Draper
  • Gilmore Stone Family Trust
  • Michael P Lazarus
  • Mr. Tom Livermore
  • Kirby Walker & Paul Danielson
  • Leslie Walker
 

About Us

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. Marfan syndrome is a chronic and progressive genetic disorder that affects the body's connective tissue. There are also several disorders related to Marfan syndrome that cause people to struggle with similar physical problems. We will not rest until we’ve achieved victory— a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

For more information: www.marfan.org 516-883-8712

 

 

 

 

Contact Us

For more information about Evening with Heart, please contact Deborah Goodman:

516-883-8712 X154

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