Join us for a fun-filled evening featuring an upscale cocktail party at the Highline Ballroom in the Meatpacking District of New York City. Evening festivities include a Silent Auction packed with adventures and items you cannot live without!
All proceeds go to improve the lives of those living with Marfan syndrome and related connective tissue disorders.
Evening with Heart Committee
Alix & Ezra Jennings
Barbara & Jonathan Lerman
Chrissy & Scott Kenny
Lindsey & Ben Weisman
Tanja & Peter Vogel
Vicky & Luis Arias
The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. Marfan syndrome is a chronic and progressive genetic disorder that affects the body's connective tissue. There are also several disorders related to Marfan syndrome that cause people to struggle with similar physical problems.
We will not rest until we’ve achieved victory— a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.
For more information: www.marfan.org
For more information about An Evening with Heart, please contact Deborah Goodman: