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The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related conditions. Marfan syndrome is a chronic and progressive genetic condition that affects the body's connective tissue. There are also several conditions related to Marfan syndrome with similar physical symptoms.
We will not rest until we’ve achieved victory— a world in which everyone with Marfan syndrome or a related condition receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.
For more information: www.marfan.org
For more information about Heartworks St. Louis, please contact Deborah Goodman: